Being at risk of relapsing into my former condition of not writing as often as I would like, here go some thoughts. Let me also clarify that the “as often as I would like” part of my sentence above in no way implies a need to write simply because I have to write something, in order to fulfil some egotistical need to speak. It is just an exercise, which I at least believe, will help keep my mind agile.
One of the things I keep coming across lately is how upset some multiple sclerosis (MS) patients are with people that tell them that their symptoms “happen to everyone.” To be clear, I personally ignore such comments. But the frustration of those patients with the lack of understanding from their audience about their condition is understandable. Perhaps because the statement gives rise to expectations that MS patients can and should perform just like everybody else. Or at least in the way expected from everybody else.
There comes a time when you run out of excuses for not doing something you should have been.
That time is now.
It may have been a love song. Long before Cat Stevens became Yusuf Islam. But in this case it is much closer to reality. And that is frightening. I try not to take a vocal political stance. Don’t get me wrong, I am a political being, just as everyone else should be – because apathy is not an acceptable option (just ask my friends). And because I am political I am taking a stance.
I do realise that it’s been a while since I posted anything. Yet again. But I meant to. Honestly. And I am not one for making up excuses – well, apologetic excuses that is. But, I do have one. Cognitive difficulties!
4 months later.
No, this isn’t reference to a post-apocalyptic world, where society has collapsed and the world has been overrun by zombies.
Or taken over by an evil overlord.
It’s been a while since I wrote something MS related. The past couple of days something has been occupying my thoughts though. How others view you when what you have is an invisible disease. Invisible to all but you that is.
About a year ago I published my first post. I don’t remember the exact day – lately my memory, among other things, is not what it used to be – but I know it was right before my birthday. Well, that day is upon us once again.
About seven billion of them!
As you can tell I am not talking about actual snowflakes. Not about those glossy white, frozen raindrops that fall down from the sky in some parts of the world and carpet the ground with snow. What I am talking about is the uniqueness of each individual on the planet.
Right after midnight my social media feeds were flooded with wishes for a happy 2017, and inspirational messages comparing this New Year with a blank book with 365 pages, and urging us to write our story. Well, flooded may be a bit of an exaggeration. There were definitely quite a few of these messages.