30 May 2018, the day on which I write this post, is World MS Day. The global slogan for this year is #BringingUsCloser, closer to, according to the campaign, ending MS.
It’s been a while since I wrote something MS related. The past couple of days something has been occupying my thoughts though. How others view you when what you have is an invisible disease. Invisible to all but you that is.
Right after midnight my social media feeds were flooded with wishes for a happy 2017, and inspirational messages comparing this New Year with a blank book with 365 pages, and urging us to write our story. Well, flooded may be a bit of an exaggeration. There were definitely quite a few of these messages.
With 2017 now just hours away, one invariably reflects of the past year. Things that happened in their lives, things that happened around the globe, things they would have loved to do or planned to do but didn’t, things that could have been done differently.
There is a saying that goes a bit like “when nothing goes right, go left.” Over the past nine and a half years, it seems all I had been doing was going left. In my personal life, in my professional life, and especially when it comes to health. I have been through half a dozen different treatment options, and while some were more successful than others (I was surprised to see that the alternative treatments worked better than traditional medicine), there was always a drawback, some side-effect, something making me a bit unwilling to trade a “normal” life for my new normal.
Today was not a very good day. Or rather, it was a good and productive day, I just didn’t make it to work. Being “confined” at home meant I had some time to take care of things, and then read all those posts, websites, articles that I have been saving over the past weeks. And I came to the realisation that there is just too much clutter around.