It’s been a while since I wrote something MS related. The past couple of days something has been occupying my thoughts though. How others view you when what you have is an invisible disease. Invisible to all but you that is.
I followed my advice. I put my notebook to good use and started jotting down my thoughts. So I can turn them into blog posts. And it made me feel good. About me, about what I do, about what I can do. Which to be honest is not an easy thing to do – at least some of the time. Not because of my MS, but… No, wait! It is because of the MS (for the most part at least).
Observing the world around me lately I noticed a reluctance by people to accept the inevitability of change. Now, it’s not like I’ve been oblivious to this reality – and it is a reality no matter how liberal you think the world is – but the truth is that whenever you think you’ve found its limits, there’s that little bit more that kind of catches you off guard.
Today is #WorldMSDay. The actual day I was talking about in my post on Monday. In that post I urged people to go out today (or any day they want to for that matter), and talk to someone with MS. Have them explain what life is like for them, and how their life goes on despite the difficulties.
And two of my colleagues followed that advice!
I know that this breaks my unofficial “post every fortnight” rule, but I came across a story today that I just had to comment on.
During my afternoon browsing of news apps on my phone, specifically going through my feed on the BBC app, I came across this story, a blog post shared by BBC Trending. Long story short, the story outlines how pro-Kremlin Komsomolskaya Pravda supports or describes the disapproval of and ostracism of disabled people.
MS takes a toll on you. Physically and emotionally. The physical part there is not much one can do about. Someone diagnosed with a chronic disease will have to accept (notice I am not saying surrender to – but more on this later) the fact that their condition will deteriorate as time passes. Deteriorate in various degrees and forms.
I started this blog with the intention of showing people that MS will not stop me in my tracks, and is not a “death sentence.” However, I thought that simply showing how strong someone with MS can be would give the wrong impression, and people also need to see the difficulties in living with MS.