One of the things I keep coming across lately is how upset some multiple sclerosis (MS) patients are with people that tell them that their symptoms “happen to everyone.” To be clear, I personally ignore such comments. But the frustration of those patients with the lack of understanding from their audience about their condition is understandable. Perhaps because the statement gives rise to expectations that MS patients can and should perform just like everybody else. Or at least in the way expected from everybody else.
4 months later.
No, this isn’t reference to a post-apocalyptic world, where society has collapsed and the world has been overrun by zombies.
Or taken over by an evil overlord.
After a month off my blog – I did kind of slack it off during August, because, August – I am finally back. So, let’s have a short update.
August was dreadful. Hot, humid, just unbearable. And coupled with all the work I had to do (on three fronts mind you) I was absolutely exhausted. Drained of all energy and quite frankly dragging my self from home to the office and back. I am certain the heat took a toll on other people too, but having to also deal with MS – as I’ve said before – accentuates things. And no, don’t ask me to quantify how much worse it is, I cannot do that. It just is. Please accept it.
Today is #WorldMSDay. The actual day I was talking about in my post on Monday. In that post I urged people to go out today (or any day they want to for that matter), and talk to someone with MS. Have them explain what life is like for them, and how their life goes on despite the difficulties.
And two of my colleagues followed that advice!